Friday, June 24, 2016

Praying Friends

Daniel was blessed throughout his lifetime to have many, many praying friends.  I cannot even imagine what the past 7 years would have looked like without these prayers.

A few days ago, I was going through some of  Daniel's baby things that I have saved, and I came across some scrapbook pages that my friend Beth had made for Daniel's baby shower.  She had some of the women who attended write prayers on the pages. This shower was thrown and these prayers were written before Daniel was even born.   My eyes filled with tears as I read their sweet words to the Lord and to Daniel, and when I came to this one they poured from my eyes...



My dear friend Laci wrote:

"Daniel, My prayer for you is that you will love the Lord your God with all your heart, soul and mind.  You are blessed in so many ways.  May you always cling to the Lord and may your life have an incredible impact on this world, and on eternity.  Honor your mommy and daddy and honor the Lord.  We love you!  Laci" 

Tears fill my eyes again as I re-write these words.

I think that the Lord answered every one of those words prayed.

I know that Daniel had so many faithful prayer warriors.  But the Lord let me see and hear this dear friends prayers over the years.

When Daniel was first in the ICU in April of 2010, this photo was shared by Laci asking people to pray for baby Daniel...


I remember seeing this while we were in the ICU during that first 35 day hospital stay.  Tears filled my eyes then (and now!) and my heart overflowed with thankfulness to have such a dear, praying friend.

And I will never forget visiting their house in the summer of 2012, the girlies were all about to take a bath together in Laci's big tub.  On her bathroom mirror was a photo of Daniel, myself and Laci that she had there as a reminder to pray for us.  Again my heart overflowed with thankfulness.

After Daniel's burial and celebration of Life she shared this photo...


Everyone should be so blessed to have a praying friend.  I know that we are blessed with many faithful prayer warriors.  Laci, I am thankful you are one of them.  And thank you to any of you reading this who have prayed for our family over the years.  I am confident that God has used and is using your prayers to strengthen, encourage and sustain our family.

"A friend loves at all times and a brother is born for adversity."  Proverbs 17:17

Thank you Lord for praying friends.



Tuesday, June 21, 2016

Dr. Ivy and Beth


This past weekend, Dr. Ivy and Beth (the Nurse Practitioner with the Denver team) were in town for the PH Convention.  On Saturday night they met us for dinner.  Daniel truly was blessed with the best possible medical care.  We are forever grateful for their help and care.  Besides being amazing physicians, they are truly wonderful people.  These are the photos from the last appointment Daniel had with them.  Dr. Ivy taught Daniel to stick out his tongue for one...;-)



This particular trip Daniel and I had made a day trip to Denver.  We flew out in the morning, rented a car in Denver, went to his appointment and thru his various tests at the Children's Hospital, met with Dr. Ivy and Beth, returned our rental car, went back thru security and then flew home.  It was a BIG day and a BIG adventure for us both...


This is what we looked like walking around the airport...

Daniel loved Dr. Ivy and Beth.  We have photos up in his room and in videos that he would watch.  All of my kids loved them.  These are just a couple of the photos we took over the years...




Thank you Lord for providing such wonderful care for our son.

Tuesday, June 14, 2016

Two Red Hearts

This morning was hard for me.   A Tsunami of tears hit this afternoon.   I cannot anticipate when this will happen.  Sometimes something triggers it, other times the wave of emotion just comes.  Today it knocked me over.

I have been taking photos for VBS at our church this week.  For several years, I have been unable to volunteer or help with VBS as Daniel was not old enough to attend, and in order for me to help I would have needed someone to watch him.  This was the first year he could have gone, as he was just at the completed kinder age.  I was hoping to volunteer in his class and watch him participate.  Instead I am trying to "do life" or find a "new normal" without him.  Words seem so cheap as I try to talk about the forward process necessary.  Because you see, my girls were still excited to attend this summer and I was thinking I should help somehow...not just go home alone every morning.

When I registered my girls last Friday (totally last minute) there was a box you had to check if you were okay with the church using photos/video taken of your kids during VBS.  I thought, "Hmmm, I wonder if they need an extra person to take photos.  That might be a good fit for me emotionally right now."  Because as I have already written, the Tsunami's come...at unexpected times...and so teaching didn't seem like a super great idea.

Anyway, the sweet lady in charge of VBS texted me Saturday night and asked if I would like to take photos/video for them this week at VBS.  I immediately texted her back and said, "Did I ask you to do that or is this the Lord's doing?" (My brain is so foggy these days, that I thought maybe I had told her this would interest me?) She replied, "You didn't tell me...I think God's in everything so I'm going with that!"  

So that's how I became one the photographers for VBS.  Thank you Lord for how you work in every detail.

Today was hard because outside of the main sanctuary I was offered pizza.  (Weird sentence I know!) There was pizza and salad for the pre-school workers and since I am taking photos of everyone, I qualified.  Let me back up for a minute.  A few months before Daniel died, the sweet pre-school coordinator had set up for Daniel to have one on one Sunday School.  He was only able to attend two Sunday's before he got sick, but he LOVED it.  So today, as I walked through the pre-school doors to get my piece of pizza, I saw the bright hallway that led to the little classroom where Daniel went to Sunday School.

And my mind flooded with memories.  I could see him running.

He always ran ahead of me, casting a glance over his shoulder to see if I was following.  His little arms swinging excitedly as he went.

I made myself walk down the hallway, and then the tears flooded over and spilled onto my cheeks.  I could see him come to the gate (a gate I could never figure out how to open) and be smiling his huge ear to ear grin.  Excited to go in when we arrived and excited to show me and tell me about his time when I came back to get him.

He loved water, so he constantly ran to the sink in that classroom (during class too!) to wash his hands "One more time".  After the first week, I learned to talk to the teacher through the gate, because as soon as that gate opened he was off.  I remember Kay trying to talk to me about the schedule one Sunday and Daniel disappeared in the sea of people leaving church...I spotted him 20 feet ahead of me ready to run out the doors.  I yelled over my shoulder to Kay "Just e-mail me!!!"

That was life with Daniel.  He always kept me on my toes.  And you had to keep your eyes on him at all times!!  Silly boy.

And so I stood outside his little classroom today with my piece of pizza in my hand, trying to finish it quickly.  Frozen to the ground.  Afraid to make eye contact with the other adults.  Knowing full well the floodgate of tears was about to start pouring.   I was annoyed with myself, as I dropped a green pepper on the tile...I had to go cry...but I had to clean it up first.

I picked it up and threw my plate away.  I smiled as best I could as I passed people.  It was the end of the day, so everyone was busy.  I just wanted to make it to the bathroom.  I did and as soon as the door shut I let the tears fall.  And fall.  And fall.

I miss him.  I love him.  I miss everything about being his mom.  Everything.

After a few minutes, I wiped my face as best I could and went to get my girls.  As soon as I saw Lizzy I knew she knew.  As we walked she said, "You've been crying mommy."  Sweet girl.  Yes.  Yes.

I cried on the way home.  For a long while with Brent.  And now again as I write.

The two read hearts title is from something different than Sunday School.  But this card was made on the same day that Daniel made cards for his Sunday School teachers, so somehow in my head all these memories are together.






This card was for Taylor.  She forgot it here the day he gave it to her.  I found it a few weeks after he died, and gave it to her then.   They both loved the color blue, so he chose a blue card, blue jewels, but then he put two little red hearts in the corner.   I do not know how I missed the significance of the two red hearts the first time I saw his card.  This was for he and Taylor.

He knew and felt so much more than we ever could know because of how he couldn't talk much.  Oh but how his life spoke big.

And oh how I miss my boy.


Saturday, June 11, 2016

This Face

I am writing this blogpost at the baseball field where Drew's team is playing tonight.  The last time we were here was about one year ago.  That night one of the sweet mom's took these photos of Daniel.  Oh how I miss his big grin!


Here he is looking at me saying something like, "Look, the lady who takes photos of Drew and the team is taking MY photo!"  He was excited about it and posed for her!


This is the "imaginary bat on his shoulder pose".


In this last one he is looking at me again...starting to say his "Heyyyyy".  Love it.  And I love those big brown eyes so very much.


I missed you at the games today Daniel.  You would have needed lots of ice.  LOTS!  It was hot.  

Thank you Delaine for these beautiful photos.  I love them.  And I treasure them.  

Thursday, June 9, 2016

Watermelons

Tonight I bought a Watermelon when I was at Costco.

We knock on watermelon's to find the "best" one.  I learned this from our friend Toby.  Daniel thought this was hilarious and so tonight as I knocked on a few watermelons to find the best one, tears silently fell from my eyes.  As they fell I was also smiling inside thinking of dozens of times I had done this with Daniel and how the knocking always produced a belly laugh.  Strangers shopping at the same time would often smile or laugh along with us.  It always amazes me how I can feel genuinely sad and happy at the exact same time. 


Daniel was with me always.  I miss him everywhere.  I see him everywhere.  I think this is why I might actually have a million memories.  If not, it's close.

I miss you Daniel. 

Saturday, June 4, 2016

Daniel's Visitation, Burial & Celebration of Life





On Mother's Day our dear photographer and friend sent us the photos she had taken from Daniel's visitation, burial and celebration of life.  I have looked through the 100's of photos many times since having received them.  I have also listened to the song "In Jesus Name" over and over since Daniel's passing.  These past weeks as I have been out running and listening to this song, I started visualizing the photos Amanda took for us to this song.  This video is the result of that.



It is in the name of Jesus, in the person of Jesus that I find my hope.  Because of my faith in Him, I have blessed assurance that I will one day see my sweet Daniel again.  I long for that day, but I also know that by the grace given through faith in Jesus I will be able to wait on the Lord for that reunion.



I love you sweet Daniel.  I miss you and I love you and I praise God that you are with Him!!



"I am the resurrection and the life...he who believes in Me will never die."  -Jesus